When it comes to health care, politics is always personal. That’s the particular message from one New Jersey mother who, as lawmakers wrangle recently with an Affordable Care Act alternative bill , has opened up about how exactly such legislation could impact the life span and survival of her younger son.
Two-year-old Ethan Chandra was born with heterotaxy syndrome , a rare genetic disorder that can result in the malformation or abnormal agreement of internal organs. His mom, Alison Chandra, told CNN on Weekend that Ethan was born along with multiple congenital heart defects, two left lungs and several spleens. His liver, gallbladder, plus stomach are all not in the proper place.
The toddler has suffered a slew of medical procedures since he was born, including multiple cardiovascular operations. On Friday, Chandra discussed on Twitter the hospital bill on her sons most recent surgery, an open cardiovascular procedure.
Thanks to their insurance coverage, the family only had to pay $500 for the surgical procedure. In an ensuing Twitter exchange, Chandra explained how insurance has assisted the family to cover her children’s mounting medical expenses which she said has long surpassed the million-dollar mark.
Referring to the health care expenses the GOP unveiled last week, that allows states to reintroduce annual and life time limits on insurance coverage, Chandra expressed deep concern how this kind of change could impact her child.
Her tweets on Friday, Chandra’s story have gone viral.
Chandra has been using the media’s attention as an opportunity to share the stories associated with other families whose lives will be fundamentally altered by an ACA repeal.
The Congressional Budget Office released a report Monday showing that 22 million fewer individuals would have health coverage over the next 10 years under the proposed GOP healthcare bill compared to coverage under the ACA.
Chandra said she expectations lawmakers will consider children such as Ethan as they decide what to do following.